Prayer, Purpose & Passion

Sunday, March 25, 2007

Another question....

Here's another question that my best friend asked of me regarding the way some people treat someone with a disability. I'll admit, this is a difficult question for me to answer...but I did say that NO QUESTION would go unanswered, I'll give this one my best shot. Hopefully, I'll be able to answer this in somewhat of a generalized manner, without allowing emotions to play too big a role.

My daughter gets really angry when people talk to her like she's in preschool because of her disability. Does that end as you get older? If not, how do you handle it?

Unfortunately, no. This doesn't end as you get older. In fact, it'll probably get worse in some respects. While she may not necessarily get too many people speaking to her as if she can't really comprehend much (pre-schooler), she may end up experiencing something that I have experienced personally. In fact, it's been happening to me on a fairly regular basis lately. Here's what I mean: Anytime I have ever had a male friend, there always seems to be someone who will inevitably ask the question, "Is that your boyfriend?" or worse yet, the more presumptuous form of this question: "How's your boyfriend?"...and other various "boyfriend" related comments.

Sure, there may be some people who may actually think that I am in a relationship with someone they see me with a lot, but in my experience, that's rare. Most of the time, it's just someone being "cute", because they know perfectly well that "someone like me would never have a boyfriend" (I've never had those exact words said to me, but something similar). The first couple of times I hear this from people I've corrected them and said "He's just a friend", but if it continues, especially if it's from the same person, I may just laugh it off and try to change the subject, because I know that nothing I say will stop this from happening. Yes, it bothers me to a certain extent every time it happens, but it doesn't REALLY bother me unless my friend happens to be within ear shot (I have had people make these comments when a male friend is around intentionally). In my experience, guys will only hear these things "x" amount of times before they start thinking that maybe I have said something to encourage such comments. This results in one of two quite painful things happening:

1) An awkward conversation takes place where this friend will give me the standard "I'm flattered...but" speech. You know the one..."I'm flattered that you care for me, but I just don't see you that way...". This conversation has always been unnecessary 95% of the time (the other 5% of the time, there may have been feelings there, but let me make clear that I HAVE never, and WOULD never solicit such comments)...Why? Because I always go into friendships with guys, knowing that nothing more will ever develop. I could go into why I know this, but I won't for now...

2) The friendship will end because he doesn't want others getting that kind of idea about us. For me, this is something I fear every time I make a male friend. I don't have many friends to begin with, so I deeply value all of them. As far as I'm concerned, no one (not just the guys) are dispensable), so losing a friend over something like this is extremely painful for me...even though I can clearly see his side every time it happens.

I guess the only over all advice I can give your daughter, is to just be who she is proudly, and to not worry about those who don't speak to her in an age appropriate manner. In my experiences with such people, correcting them is fruitless MOST of the time. Generally, these people are so set in their ideas about people with special needs that nothing anyone says will change it. Eventually, she'll learn to just ignore these people, because she'll be surrounded by people that see HER. You watch...at some point, these people will become something for her and her friends to laugh about, because they'll know how utterly ridiculous such behavior is.


Keep the questions coming...I hope that even though there aren't too many people asking questions right now, that everyone who reads this is at least learning something. I didn't think I would enjoy doing this as much as I am...so the learning curve here is totally inclusive.

One last thing...For those of you who are uncomfortable posting questions in the "comments" section, the option is now available for you to submit your question to me via e-mail. Just click my photo on the right-hand side of the page, then click the "E-mail" link on the left-hand side. Please keep in mind that I will be the only one able to see your name (if you submit via e-mail only...anonymous posts in "comments" do not require any identification). Names will NOT be published.

10 Comments:

  • At Monday, March 26, 2007 at 12:40:00 AM EDT, Anonymous Anonymous said…

    Some of what you said sounds so much like my daughter. She's just discovering boys don't have cooties and they are discovering her. There is a boy who told her friend that he thinks she's pretty. She wouldn't allow herself to accept that a boy would think that.

    I remember a girl saying (I was eavesdropping so couldn't comment) that it was ridiculous that a boy would like my daughter. She just sat there believing every word that little brat said. Have a feeling it wasn't the last time she heard such a comment.

    Now, she's still way too young to be looking at boys like that, but it concerns me that she may not allow herself the right to have someone care about her one day. So, now I try to slap her upside the head when she makes a face about what this boy says while trying to not encourage her interest because of her age. I walk a tightrope, but I think she has just as much right to be loved by a man one day and to love him in return.

    Sherry

     
  • At Monday, March 26, 2007 at 1:11:00 AM EDT, Blogger Ashleigh said…

    Perhaps if my parents had done something like that with me, I wouldn't be so disgusted by pictures of myself. Like your daughter, I am having a really difficult time believing that one day a man would look at me and see beauty...

    I never have...I've tried though...sat in front of mirrors for hours trying...still can't see it. Maybe I never will. I think, though, that it may be time for me to just accept any compliments I receive without refuting or making jokes...no matter what I see...Otherwise, I may miss my chance to be loved altogether.

     
  • At Monday, March 26, 2007 at 2:57:00 AM EDT, Anonymous Anonymous said…

    First off Ashleigh, you are BEAUTIFUL inside and out! I want you to know that. :)

    Also, I don't think ANYONE is immune to the question "is he your boyfriend?" So sometimes, the people may not mean it in a cruel way, but they are just curious. I've had friends ask me that out loud, in front of the guy in question, and I think that they really don't mean anything by it... they are just curious. I suppose I've asked friends from time to time "is he your boyfriend?" BUT I at least try to do it discreetly and privately. So I just want you to remember... in some cases it may be a completely innocent (thou nosey) question. LOL

    HOWEVER, I do think I understand where you are coming from. So many times I feel like people imply or tell me that I'm not deserving of what an able-bodied person is, including a love life. In fact, it wouldn't surprise me if a certain guy (I think you know who he is) was told that I wasn't good enough for him by a group of ignorant people. The truth is though, I know in my heart no one could ever have cared for him as much as I would have if our romantic relationship had blossomed. In the end, I feel like he is the one who is missing out.

    I can go on and on and on about this but basically, I feel it is ridiculous for anyone to imply you don't deserve that type of relationship. I have great faith you will have one someday. I also believe that Sherry's daugther deserves the same thing.

    ((((hugs)))
    Steph

    PS Here is a great quote I posted on the diffability thread: "There is no one else in the whole world quite like you. When you hide or devalue your gifts and personality, we are all a little less whole."

    You make my life a little more whole. I just wanted you to know that!

     
  • At Monday, March 26, 2007 at 3:37:00 PM EDT, Anonymous Anonymous said…

    As I was falling asleep last night, I got to thinking a lot about the question this blog was around. I actually feel like I have some perspective on it, and I hope I'm not being too bold in sharing it. (Ashleigh--You have my permission to quote me and post this on your blog where more people can see it if you would like too....you don't have to, but you can if you'd like or if you think what I said needs to be heard.)

    "My daughter gets really angry when people talk to her like she's in preschool because of her disability. Does that end as you get older? If not, how do you handle it?"

    I don't know if anyone speaks to me as if I'm in preschool anymore, but I do know that I feel that people often treat me as if I am younger than I am. I'm finding more and more that most people who still do this are either in their late teens to mid thirties.

    For instance, I went on a trip with our youth a couple years ago and a misunderstanding occurred. I was an adult, and my perspective should have been considered of more value than the other person (a thirteen year old) who was involved. However, the youth pastor and his wife immediately jumped on her banwagon, allowed her to speak first, and basically treated her as if she were the older one involved. That really hurt (especially since she is really immature, but I digress....) They honestly never asked about my viewpoint or my feelings, and that led to me basically ending my relationship with them. I refuse to be treated like a child by people who I had done nothing but be nice and respectful too. I also felt that they were treating me as I was treated in high school--they treated me as if my life had less value than theirs or hers because of my disease.

    Basically, your daughter will probably still run into small minded, ignorant people who don't give her the respect she deserves. It's a sad, sad fact. But she has to consider the source sometimes--small minded and ignorant. (I'd rather have my disability any day than be small minded and ignorant!) What I did was attempt to educate them, and when I finally had enough, I broke my ties. I have plenty of supportive people in my life without them. The best thing to do as a mother is just be supportive of her, and point out those other supportive people in her life.

    The good news is that not everyone in my life treats me that way! I have tons of support at Simply. I also have an incredible repore with some of the other people in my church. Now, the majority of these people are older, and I think the reason they treat me with respect is because they are WISER. They talk to me as an adult, and if anything, the treat me as if I'm older than 22.

    I still get entirely frustrated when people speak to me as if I'm still a teenager when I'm 22, but I'm learning more and more how to ignore it. I know in some areas my disease has delayed me (I can't drive for instance) but I also know in some ways I'm wise beyond my years. I appreciate the people who realize that, and do my best to ignore the people who don't.

    Hope that is helpful.

    Steph

     
  • At Monday, March 26, 2007 at 5:23:00 PM EDT, Anonymous Anonymous said…

    I agree daughter needs to learn to ignore comments even if that’s hard.

    But I have to say one thing about this boy – I’m proud of him for seeing her for who she is. He told her he liked her poem. He doesn’t get upset when she does better then him on a test. He treats her like any other kid. Have a feeling he won’t let her get away with anything either.

    Also, I have a sneaking suspension that when she is alone, she is glad that he has distorted eyesight and hopes he won’t get his vision corrected. She’s still a girl and isn’t it true that all girls like having a boy think they’re pretty?

    Ash – I’m going need your help. I’m so not ready for the teen years with her.

    Sherry

     
  • At Monday, March 26, 2007 at 5:34:00 PM EDT, Blogger Ashleigh said…

    Sherry: I can tell you from my own experiences that having a boy tell you to your face that he thinks you're pretty--no matter how distorted his eyesight is--is the kind of thing that keeps you up at night--smiling.

    As far as not being ready for the teenage years...All I can tell you is the same thing you tell me time and time again...Get over it. It's gonna happen whether you're ready or not, no matter how much you fight it...(I seem to recall hearing those exact words from you recently)...

    I'm always here to listen if you need me. Daughter will be just fine...She has a wonderful role model in her mother.

     
  • At Tuesday, March 27, 2007 at 12:47:00 AM EDT, Anonymous Anonymous said…

    QUOTE:
    "But I have to say one thing about this boy – I’m proud of him for seeing her for who she is."

    I am too. I think this world would be a lot better if more people would view the world as this little boy does. I get the impression that he views her as a person first and sees her beautiful heart of gold and that is why he likes her. He knows what is important, and that her disability does not define her.

    --Steph

     
  • At Tuesday, March 27, 2007 at 8:57:00 AM EDT, Anonymous Anonymous said…

    Another question - The teen years are about to begin for daughter. She needs to grow up. It is her right. BUT -- it scares me. I wasn't afraid with son. He's typical. He's social by nature. But -- daughter. I fear for her safety.

    Ash - you are so independent. You live on your own, go to school, etc. What did your parents do that helped you be able to become independent? Would you do the same for your child (with or without a disability)?

    Sherry

     
  • At Tuesday, March 27, 2007 at 5:33:00 PM EDT, Blogger Lori said…

    Ash, alot of people feel the same way regarding beauty - even the most stereotypical pretty/handsome types.

    From your pic, you look very attractive in my eyes. The first thing my friends Cam and Michelle said to me about meeting you (xmas play?) was that you were very pretty - and so nice.

    I understand though - what it's like to have a distorted image of oneself. Isn't it always because someone, family or not - criticized us, or society does direct or indirectly?

    I know that the reasons for this type of perception differ greatly amongst person to person but all I'm saying is that I can relate. I know beauty is a package deal, but still I've always felt just 'average' not that there is anything wrong with that. But like the comments about 'is that your boyfriend', I am also skeptical of compliments and feel disgusted by pictures most the time as well. If it's not some body part it's always my nose or round face (it's like, the fricking moon I tell ya).

    Re: compliments, sometimes I think - the person is either lying or they have bad taste haha. Or I'll think, they are on crack or something.

    Feeling disgusted with pictures - I think alot of people go through that as well. It's more like a disappointment when you see the picture and compare to others (especially stars). If you say anything people think you are fishing for compliments - but who really does that? I know, perfect model types who are being ridiculous.

    Life is funny, I suppose I prefer to be humbled by appearances than to think I'm all that anyway lol.

    P.S. You know, my husbands mother used to model - she is gorgeous. His sister also is a knockout - totally ridiculously gorgeous. I was so insecure in the relationship at first because I thought he would want to be with someone who matched up to their level of outside beauty (they are beautiful inside as well but for the point here just saying'). In the end, although yes he finds me attractive it's the package deal and what's inside that mattered and probably I look as beautiful to him as they do because he fell in love with me.

    There is no right or wrong answer regarding whether a person is or isn't attractive, it's all in the eyes of the beholder - as we know, and so 'just know' that regardless of how you perceive yourself others will often see it in a totally different light, and try and let them. I know, it's hard.

     
  • At Monday, April 16, 2007 at 6:15:00 PM EDT, Anonymous Anonymous said…

    Ashleigh, for the record, my very first impression when I met you in the entrance of Kelseys at wing night a few weeks ago was that you are pretty.

     

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